Bobbi Louise Morgan

Bobbi Louise Morgan
Sunday 23rd January 2005
3 years old
Cwmbran
Twin sister Danielle
Bobbi had Cerebral Palsy and severe medical problems

Bobbi was born 8 weeks early along with her twin sister Danielle. They were both small but very
healthy and came home from scbu a few days after xmas (at 3 weeks old).
Bobbi became ill at 5 weeks with a virus and was rushed to hospital where she suffered a cardiac
arrest. Her heart stopped beating for 5 - 10 mins before she was revived. We were told that she
would be extremely brain damaged and her future was very uncertain. She became worse during her stay
in the university hospital in wales on her second night and we were told that she had a 1% chance of
survival. Luckily she pulled through but was left with Cerebral Palsy, epilepsy, visual impairment
and panhypopituitarism (damaged pituitary gland). Bobbi needed 13 different medicines and
physiotherapy 4 times a day but it never got her down she was always ready with a smile.
Bobbi spent most of her life back and forth hospital and built up solid friendships with the staff
there.
At 4 months old the twins started at a centre called TOGS, this was especially for children with
disabilities, they loved every minute there and was loved by everyone that crossed their path.
Bobbi started to go to Ty-Hafan's children's hospice at the age of 1. This proved invaluble to us,
we were able to have respite and know that Bobbi was looked after by the best people
possible.
One month after Bobbi was 3 she became ill with pneumonia and sadly died 3 days later in our arms.
Our family and Godparents were there to say goodbye. Over 400 people attended Bobbi's funeral, all
wearing pink (Bobbi's favourite colour). She had a beautiful pink casket and more flowers than I'd
ever seen. Bobbi continually beat all the odds and was constantly proving everyone wrong. The day
she died the biggest part of me died too. Life without her is sometimes too hard to bear but we
still carry on for Daniele and Bobbi's new little brother, Harison and to keep Bobbi's memory
alive.

A letter for Bobbi. This was read out at her funeral.
Dear
My Bobbi-Lou, my cheeky monkey, my gorgeous angel. I had so many names for you, you responded to
each and every one but your favourite was ‘my sexy angel’ you couldn’t resist it, as much as
you tried not to smile you had to, you couldn’t help it.
From the time you was born you were my strength, if I ever felt down, you were guaranteed to be the
one to make it better. I didn’t need anything to survive and get me through, only you. You had
shown me determination, strength, laughter but more importantly, how to love. I never realised how
just one little girl could bring out so much love out of so many people and give much more in
return.
Everyone that met you was always taken back by your infectious smile and your ability to charm
everyone that crossed your path. You loved to be spoken to and knew exactly how to get attention;
this normally resulted in us phoning for one of your ‘special taxis’ with the flashing lights.
Do you remember how you would go to hospital, so ill and within a few hours would magically be 100%
better? I still think it was to make sure no one forgot you. Yes, you kept us on our toes alright,
with your mysterious illnesses and the way you never really followed the rule book, always did
things your way. You made us believe that we’d got to the bottom of a situation only for you to
throw a spanner in the works and do something completely different. I think everyone will agree that
to say you were unique was a bit of an understatement.
I don’t regret a single minute of your life, not even when you got ill because if it wasn’t
for that you wouldn’t have been you. The day you died the biggest part of me died too. I don’t
know how I will live without you, I’m not sure I can. The one thought that will get me through is
knowing that eventually we’ll be together again soon but for now someone has to look after your
sister and keep her in line. I dread every morning I wake and realise you’re not here. The pain I
feel is immense. I knew this day would come eventually but nothing could prepare me for such
physical pain and I don’t think it will ever ease. I miss you every minute of every day. I devoted
my life to you and Danielle and I will carry on doing so.
As you took your last breath that Sunday, I promised never to forget you; I couldn’t break that
promise even if I tried. I’m going to make sure no-one will forget that happy, beaming smile.
I will miss every little thing about you, the way you asked for cuddles by shouting, how you
called ‘mum’ hundreds of times a day, the way you sucked in your bottom lip when you was told
off, even the way you could poo everywhere and still miss your nappy, you always found that funny.
Most of all I’ll miss that smile; I could never get enough of it, every one so precious. All I
ever wanted was one last smile but you were too ill. I have my photos and that’ infectious
smile’ etched in my memory. You will live on in my heart and in Danielle and I’ll never let you
go.
I can’t bear to say goodbye so sleep tight my gorgeous angel and I’ll see you soon.

All my love
Mummy
xxxx

This is Bobbi's poem on her headstone.

The day you got ill, it tore our hearts in two,
They told us there was nothing that they could really do.
We watched and waited with aching in our hearts,
Then you got stronger, determined not to part.
We were told you may not run, laugh or play,
And that your thoughts may seem quite far away.
But you proved everyone wrong, right from the very start,
We knew that you would, for you had it in your heart.
Those eyes twinkled sunshine, as that smile did too,
You always amazed people with how much you really knew.
The three years we spent together were more special than we have known,
And since you’ve come to stay with us we know that we have grown.
Then that terrible day in January, you got ill once more,
We felt real pain, pain we’d never felt before.
We held you in our arms as you got taken away,
But our hearts is where we’ll keep you and where you’ll always stay.
Our lives will never be the same and we’ll miss you more each day,
But we know we’ll be together again, for it’s only a whisper away.
You’ve made us so proud; you never had to try,
But for now we’ll say goodnight, but we’ll never say goodbye.

The other poems on Bobbi's headstone are:

A face that lit up every time we were near,
A giver of love so precious and dear,
A twinkle by day, atwinkle by night,
Bobbi's star is now shinning bright.

And the one on the back of her headstone is:

I'm up with the stars looking down on you,
I'm the sun up above when the sky is blue,
I'm always smiling and laughing too,
I'm the cheeky little girl who you call Bobbi lou